For family and friends
The COO also supports the family, giving them practical advice and information to help ease the burden of this life changing event. They help the family navigate the care pathway for a SCI. COO’s offer emotional support, and organise peer support, linking them with other families who have been through a similar situation.
We know that there are significant information and support needs for family members from the moment a SCI occurs, during the hospital stay, rehabilitation phase and after discharge home. Findings from our research conducted with NUIG and UCD in 2018 described how family life is disrupted, and new and unfamiliar responsibilities combined with emotional distress is the new reality. Family members have their own specific concerns and information needs distinct from the Service User. Research also identified the need for community support network, professional support and assistance with navigating the health system for family members and carers.
Our trained peer volunteers include family members who can provide one to one support to family members or in a group setting.
Whether you need answers to a simple question, or need assistance in some other way, we’re here to help. Please contact us using the link below, we look forward to hearing from you!Get in touch